DZL Core Dataset

Science and Research

The DZL core data set represents the most important lung research parameters. All parameters that are part of at least two disease area core datasets were included.

Kategorie	Parameter	Value Set	Description
Biometric Data	Gender	Female Male Divers
Biometric Data	Age at visit
Biometric Data	Height
Biometric Data	Weight
Biometric Data	BMI
Diagnosis	Principle / leading / inclusion diagnosis	Date of diagnosis Lung Disease Healthy Control	Single choice.
Lung comorbidities	Acute Respiratory Distress Syndrome (ARDS)	Year of initial diagnosis Yes No Asked But Unknown	Single choice.
Lung comorbidities	Allergy	Year of initial diagnosis Yes No Asked But Unknown	Single choice.
Lung comorbidities	Asthma Bronchiale	Year of initial diagnosis Yes No Asked But Unknown	Single choice.
Lung comorbidities	Benign lesions	Year of initial diagnosis Yes No Asked But Unknown	Single choice.
Lung comorbidities	Bronchopulmonary Dysplasia (BPD)	Year of initial diagnosis Yes No Asked But Unknown	Single choice.
Lung comorbidities	Chronic Resp. Infections excl. TB	Year of initial diagnosis Yes No Asked But Unknown	Single choice.
Lung comorbidities	Chronic obstructive pulmonary disease	Year of initial diagnosis Yes No Asked But Unknown	Single choice.
Lung comorbidities	Cystic Fibrosis (CF)	Year of initial diagnosis Yes No Asked But Unknown	Single choice.
Lung comorbidities	Diffuse parenchymal lung disease (DPLD)	Year of initial diagnosis Yes No Asked But Unknown	Single choice.
Lung comorbidities	Obstructive sleep apnea	Year of initial diagnosis Yes No Asked But Unknown	Single choice.
Lung comorbidities	Pleural Diseases	Year of initial diagnosis Yes No Asked But Unknown	Single choice.
Lung comorbidities	Pneumonia	Year of initial diagnosis Yes No Asked But Unknown	Single choice.
Lung comorbidities	Pulmonary Embolism	Year of initial diagnosis Yes No Asked But Unknown	Single choice.
Lung comorbidities	Pulmonary Hypertension (PH)	Year of initial diagnosis Yes No Asked But Unknown	Single choice.
Lung comorbidities	Regeneration and Organ Replacement	Year of initial diagnosis Yes No Asked But Unknown	Single choice.
Lung comorbidities	Thoracic Cancer	Year of initial diagnosis Yes No Asked But Unknown	Single choice.
Lung comorbidities	Tuberculosis (TB)	Year of initial diagnosis Yes No Asked But Unknown	Single choice.
Non-lung comorbidities	Diabetes	Year of initial diagnosis Type 1 Type 2 with insulin Type 2 without insulin Type 3 Gestational diabetes No	Single choice.
Non-lung comorbidities	Arterial Hypertension	Year of initial diagnosis Yes No Asked But Unknown	Single choice.
Non-lung comorbidities	Coronary Heart Disease	Year of initial diagnosis Yes No Asked But Unknown	Single choice.
Non-lung comorbidities	Chronic Virus Infection	Year of initial diagnosis HIV Hepatitis B Hepatitis C Other No Asked But Unknown	Multiple choice.
Non-lung comorbidities	Chronic Mycobacteriosis	Year of initial diagnosis Tuberculosis Other Infection with Mycobacteria No Asked But Unknown	Multiple choice.
Non-lung comorbidities	Hospital-associated Infection	Year of initial diagnosis Bloodstream Infection Pneumonia Wound Infection Other No Asked But Unknown	Multiple choice.
Non-lung comorbidities	Tumor	Year of initial diagnosis Solid Tumor Non Solid Tumor No Asked But Unknown	Multiple choice.
Non-lung comorbidities	Neurological Disease	Year of initial diagnosis Yes No Asked But Unknown	Single choice.
Non-lung comorbidities	Mental Illness	Year of initial diagnosis Yes No Asked But Unknown	Single choice.
Health Questionnaires	MRC	MRC Grade 1 MRC Grade 2 MRC Grade 3 MRC Grade 4 MRC Grade 5	Medical Research Council (MRC) breathlessnes scale
Smoking History	Smoking Status	Active Smoker Ex Smoker Passive Smoker Never Smoker
Smoking History	Smoking Amount	Packyears Cigarettes per Day
Lung Function	FVC observed value		Forced Vital Capacity: the volume of air that can forcibly be blown out after full inspiration
Lung Function	FEV1 observed value		Forced Expiratory Volume in 1 second: the volume of air that has been exhaled at the end of the first second of forced expiration
Lung Function	TLC observed value		Total Lung Capacity: the volume of air in the lungs at maximum inflation
Lung Function	TLC%pred		Total Lung Capacity as percentage of the predicted value
Lung Function	RV observed value		Residual Volume: the amount of air remaining in the lungs after maximum exhalation
Lung Function	VC observed value		Vital Capacity: the largest volume a patient can exhale after a full inhalation
Lung Function	DLCO		Diffusion Capacity: the carbon monoxide uptake from a single inspiration in a standard time (usually 10 sec)
Lung Function	sRaw effektiv		Specific Airway Resistance
Blood Gas Analysis	Capillary pCO2		Partial pressure of carbon dioxide in capillary blood
Blood Gas Analysis	Capillary pO2		Partial pressure of oxygen in capillary blood
Exercise Testing	6MWT distance		6 Minute Walkt Test: the distance walked in 6 minutes
Therapy	Supplemental oxygen therapy
Follow-UP	Lost to follow up
Follow-UP	Patient deceased	Patient deceased Date of death
Performance and Activity	EQ-5D-5L Mobility Score	1 - I have no problems in walking about 2 - I have slight problems in walking about 3 - I have moderate problems in walking about 4 - I have severe problems in walking about 5 - I am unable to walk about	The mobility dimension of the EQ-5D-5L system introduced by the EuroQol Group. There are similarities to other performance measurements like ECOG, Karnofsky and the WHO performance scale.
Biobank Samples	Blood Sample		The availability of blood samples for a certain patient

Overview: Core Datasets

Contact

Authors
Central Data Management

Science and Research

DZL Engagements