The DZL core data set represents the most important lung research parameters. All parameters that are part of at least two disease area core datasets were included.
|Age at visit
|Principle / leading / inclusion diagnosis
|In case of a lung disease, the date of the initial diagnosis is required.
|For each diagnostic group, an explicit 'yes', 'no' or 'asked but unknown' must be recorded.
For each diagnostic group, the date of the initial diagnosis is required
|The given list of comorbidities covers the requirements of the DZG (german centers for health research) core dataset. It will soon be extended by the list of the most important comorbidities for the field of lung research.
For each diagnostic group, an explicit 'yes', 'no' or 'asked but unknown' must be recorded.
For each diagnostic group, the date of the initial diagnosis is required.
|Medical Research Council (MRC) breathlessnes scale
|FVC observed value
|Forced Vital Capacity: the volume of air that can forcibly be blown out after full inspiration
|FEV1 observed value
|Forced Expiratory Volume in 1 second: the volume of air that has been exhaled at the end of the first second of forced expiration
|TLC observed value
|Total Lung Capacity: the volume of air in the lungs at maximum inflation
|Total Lung Capacity as percentage of the predicted value
|RV observed value
|Residual Volume: the amount of air remaining in the lungs after maximum exhalation
|VC observed value
|Vital Capacity: the largest volume a patient can exhale after a full inhalation
|Diffusion Capacity: the carbon monoxide uptake from a single inspiration in a standard time (usually 10 sec)
|Specific Airway Resistance
|Blood Gas Analysis
|Partial pressure of carbon dioxide in capillary blood
|Blood Gas Analysis
|Partial pressure of oxygen in capillary blood
|6 Minute Walkt Test: the distance walked in 6 minutes
|Supplemental oxygen therapy
|Lost to follow up
|Performance and Activity
|EQ-5D-5L Mobility Score
|The mobility dimension of the EQ-5D-5L system introduced by the EuroQol Group. There are similarities to other performance measurements like ECOG, Karnofsky and the WHO performance scale.
|The availability of blood samples for a certain patient
Central Data Management