Science and Research

International Primary Ciliary Dyskinesia (PCD) Registry (PCDregistry)

The purpose of the international prospective PCD Patient Registry is to systematically measure, survey and compare different aspects of PCD manifestation, course and treatment, to provide data for epidemiological research and to identify special patient groups suitable for multi-center trials.

Study details
Study-ID: NCT02419365
Study-ID: NCT02419365
DZL Disease Area: CFBE
DZL Disease Area: CFBE
Study Type: Observational
Study Type: Observational
DZL Role: DZL recruiting center
DZL Role: DZL recruiting center
Funding: DZL
Funding: DZL
DZL Participating Sites: BIH / Charité - Associated Partner, TLRC, UGMLC
DZL Participating Sites: BIH / Charité - Associated Partner, TLRC, UGMLC
Start Date: 28.10.2019
Completion Date: 01.05.2050
Status: Recruiting
Status: Recruiting
DZL recruiting center
Link to Study


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