The Cystic Fibrosis (CF) core dataset represents the most important lung research parameters for the disease area.
|Age at visit
|Cystic Fibrosis (CF)
|PI-CF (Pancreas insufficient)
|Cystic fibrosis-related disorder
|CFTR-RDs refer to a group of diseases associated with CF mutations; do not meet diagnostic criteria for CF
|PS-CF (Pancreas sufficient)
|Pseudomonas is a clinically notable and aggressive pathogen, often causing nosocomial infections.
|Oxygen longterm therapy
|These therapies are designed to correct the malfunctioning protein made by the CFTR gene
|Specific Airway Resistance
|Specific airway resistance as percentage of predicted value (sRaw%)
|Total Lung Capacity: the volume of air in the lungs at maximum inflation
|Total Lung Capacity as percentage of the predicted value
|Total airway resistance as percentage of predicted value
|Total airway resistance
|Residual Volume: the amount of air remaining in the lungs after maximum exhalation
|Residual Volume as percentage of predicted value
|Forced Vital Capacity: the volume of air that can forcibly be blown out after full inspiration
|The largest volume a patient can exhale after a full inhalation
|Forced Expiratory Volume in 1 second: the volume of air that has been exhaled at the end of the first second of forced expiration
|Multiple Breath Washout
|Lung Clearance Index (LCI) measured by multiple breath washout is a sensititve measure of ventilation inhomogeneity
|The availability of blood samples for a certain patient
|Bronchoalveolar Lavage Fluid
|The availability of Bronchoalveolar Lavage Fluid samples for a certain patient
|Nose swab (NS)
|The availability of nose swab samples for a certain patient
|The availability of sputum samples for a certain patient
|A protein produced by plasma cells and lymphocytes and characteristics of these types of cells
|Total IgE plays an important role in causing allergic reactions.
|PsA Alkaline Protease Antibody
|P. aeruginosa alkaline protease is produced during keratitis, otitis media, CF, and bacteraemia.
|PsA Elastase Antibody
|Elastase is a major virulence factor in P. aeruginosa; it cause tissue damage during infection in the human host.
|PsA Exotoxin A Antibody
|Exotoxin A is the most toxic of the numerous extracellular proteins produced by P. aeruginosa.
|Oral glucose tolerance test (oGTT)
|oGGT are used to measure how well the body can process a larger amount of sugar.
|Chest X-ray performed
|MRT NNA performed
PD Dr. Anna-Maria Dittrich, BREATH
PD Dr. Lutz Nährlich, UGMLC
PD Dr. Olaf Sommerburg, TLRC
Central Data Management
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