The goal of the Cystic Fibrosis Registry is to establish a basis for the continuous improvement of the quality of treatment for patients with cystic fibrosis through the structured collection and statistical evalua-tion of the registry data (“quality assurance for cystic fibrosis”). The primary goals are:
• To record, analyse and improve the care situation of patients with cystic fibrosis in Germany,
• to provide the collected data as the foundation for healthcare research, development of therapy and to monitor the safety of pharmaceutical medicines,
• to prepare the registry data for patients and therapists and to portray it in a transparent manner in annually issued reports.
Furthermore, the registry data of participating CF-institutions offers the possibility of internal quality assurance.
