Science and Research

[The internet as a source of information for patients with sarcoidosis]

BACKGROUND: The internet is often used as a source of information by patients with sarcoidosis, but its reliability has not yet been comprehensively analysed. The aim of this study was to analyse the content and quality of German-language information on sarcoidosis available on the internet. METHODS: All German-language hits from the first 200 search results for "sarcoidosis" on Google, Yahoo, Bing, and YouTube were saved. Two independent investigators evaluated the content (content score with 25 items, 0-25 points) and quality (DISCERN score with 1-5 points, HONCode score with 0-8 points, JAMA score with 0-4 points). RESULTS: 128 websites and 12 videos were included. The median time since the last update was 36 and 9 months. The content score was 17 and 13 points, respectively. Quality was rated with a DISCERN score of 2.4 and 2.1 points, the JAMA score of the websites was 2 points, and the HONCode score of the videos was 4.2 points. Blogs achieved poorer results in terms of content (p=0.040) and DISCERN score (p=0.016), while the JAMA score was best for news/media (p=0.002). There were no differences for the videos. CONCLUSION: Although some German-language information on sarcoidosis found on the internet was adequate in terms of content, its quality was only moderate. It would be desirable to have a reliable and easily recognisable label for adequate information.

  • Buschulte, K.
  • Hoger, P.
  • El-Hadi, S.
  • Ganter, C.
  • Kahn, N.
  • Kriegsmann, K.
  • Wilkens, F. M.
  • Polke, M.
  • Trudzinski, F.
  • Herth, F.
  • Kreuter, M.
Publication details
DOI: 10.1055/a-2868-0156
Journal: Pneumologie
Work Type: Original
Location: TLRC
Disease Area: DPLD
Partner / Member: Thorax, UKHD
Access-Number: 42229457
See publication on PubMed


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